I think parents/guardians should have the right to put their kids in Medical research. Lets say that a child has a rare disorder that could be deadly. Do you think that the its right to put the child in a medical study so that doctors can help the child and potentially help other kids with the disorder. Possible treatments and maybe even a cure.
Some minors may benefit from being in research studies. However, there is no way that a minor can give informed consent to a doctor, as they will not fully understand the procedure or the risks in the majority of cases. The parent's decision should not overrule the child's safety, and this will be the case in the majority of medical research studies. While they may be helpful to the minor or to other patients, medical research studies are often experimental, testing potentially unsafe drugs and/or procedures. The child's individual rights must be protected. For example, imagine that as a minor, you were put in a medical research study by your parents, without knowledge of the procedures or risks, and you became paralyzed, became blind, lost brain function, or any other completely possible negative side effects from this medical research study. Medical research studies should be left to informed, mentally mature adults, and them only.
Despite there being a chance of a child developing a disorder or some form of complication, each individual is screened very thoroughly to ensure that they are under the best care for the study. Yes, a medical study does have its potential risks, but it's no different from any other procedure that has been approved. The FDA would not approve of the study if it was known to be unsafe for humans. The likelihood of a child developing any sort of complication is low, and the pros to the study certainly outweigh the cons, such as finding the best course of action for disease with the possibility of the development of a cure.
There are reasons why these medical studies are not used in daily medicine- because they are studies, and although there are no known confirmed risks from most of these studies, the possibility of deadly or harmful side affects are much greater then in normal medical drugs, practices, and procedures. In response to "each individual is screened very thoroughly to ensure that they are under the best care for the study", I say this: Shouldn't the best care for any individual be the one that has been used, tried, tested, and confirmed to be the best in the past? I agree that in some of these medical studies, breakthroughs would happen that would truly help the person rather then harm them, but most of the time the resultant effect will be neutral or negative. Medical research studies are tests on human subjects, and should only be undertaken by mentally mature adults who fully understand what the possible risks, benefits, and side effects are of these tests. A child should never be put into a medical research study by their parents, because even if the parents mean no harm, the child will never have informed consent and will be in a series of potentially life-threatening tests that could have serious long term consequences for the child.